MHS and MEF2C.org
The MEF2C Haploinsufficiency Syndrome (MHS) Community site is a place where parents and relatives of MHS children meet and exchange information.
The site tries to correlate MEF2C and GDD (Global Development delay) and other diseases, the contents of the site including the Forums, blog's and surveys are strictly private and concern only the people involved in the community , that's why this information is only accessible trough a login that has to be moderated by the site admin.
Our community is small today , however we expect it to grow quickly with the years as testing for MEF2C mutations are performed more precisely and often.
For questions please send an email to firstname.lastname@example.org and we will try to get to you as quickly as possible.
Our Facebook page : https://www.facebook.com/groups/148387552018909/?fref=nf